It's been quite a couple of weeks. I've been mulling over the idea of Epilepsy for a while and have come to a conclusion: It sucks. It's scary. I hate Epilepsy. However, I will not let it hold PP behind. I will do everything imaginable to keep PP ahead of Epilepsy! With that said, today we found out that PP pretty much has Epilepsy. I say pretty much because it was a rushed process, but I didn't need much convincing of what I already knew. The Neuro Doc only got 15 minutes of data, but it was enough. We will be back in a week to discuss the results in more detail. Since the day Doc McLellan put the bug in my ear I have been watching PP like a hawk. Every move that seemed out of place turned into 'AAAHH seizure!!!' which can be annoying! I wasn't able to film anything as instructed; it turns out that filming someone having a seizure when you're alone is really freaking hard and nearly impossible. I was able to see some key differences in PP's daily motions that helped me explain in detail the type of seizure PP has to the Neuro Doc. So when he listened to me explain the seizure, he knew what he already saw on the EEG results, and he instructed us to start PP on anti-seizure medication starting immediately. Pretty much Epilepsy.
Phew. What a relief! I mean, what?
The past two weeks have been oddly therapeutic. I've been stressed and cranky, but my nervous energy has forced me to clean and organize almost every inch of my house. Yay! PP and I have been so very busy, I hardly had time to worry. Double yay! I feel really proud of my family, we coped with only allowing ourselves 4 1/2 hours of sleep very well. Coffee was involved! It also feels good to finally have some answers. It feels like a weight lifted off of my chest. I feel like we finally got a solid step in the right direction. Quintuple yay!
It's not so bad. I am sitting right next to PP, and she's the same little girl I've always known. Even after being sleep deprived beyond belief, having to tolerate some very unfavorable conditions while being coaxed to sleep (FAIL) in a doctors office, then having a large Hungarian Neurologist stamp another line on her record, she just wants to sit next to me and tickle my leg with her monkey toes. I really feel like eliminating seizure activity will be a positive thing for our family. I'll only have to remember new medication information and to update PP's medical information, which is cake.
PP will be starting Pre-school in about two months. I feel much more at ease with this transition because of her new diagnosis. I won't have to worry about someone misunderstanding her 'outbursts' as tantrums, nor will I have to worry about her hurting other people during one of her seizures. Although it is an uncommon type of seizure, when you say Epilepsy to someone, they generally know what you are talking about. This is a new thing to me...Momma likey! I get tired of having to explain everything about Weaver Syndrome, sometimes I think I should make PP some business cards! Haha! Now I can just say, "Hey stranger, it's Epilepsy. Don't be a hater." and the light bulb will switch! Huzzah!
I'd have to say that this was a darn good Friday. I hope everyones day starts off good, and ends better!
Peace and love
XoX
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